Monday, November 22, 2010

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syndrome of the bolt, freedom and other nonsense ...

if they do not hear much of "Locked-in syndrome". It 'also known as syndrome latch "or" pseudo-comatose "or" ventral pontine syndrome. " I do not want to dwell in technicalities, we'll talk about movies and books, but I would like to explain that the locked-in syndrome (LIS from now on) is not a disease but a syndrome, ie a "set of symptoms that constitute a pathological situation without itself a disease "(Garzanti). Like, excuse me? Well, in short, is a condition in which a subject is to be for other reasons. In short, the patient is almost completely paralyzed, as if in a coma, but is not a vegetable. The terrifying aspect is that the subject is completely awake and aware but is encased in a body almost totally dead - locked-in, exactly. Very few have the "privilege" of being in that condition and a few of these very few have any chance to communicate with the outside world. Some move an eyelid, while others can turn my neck a few degrees. Few of these few of those very few have any remote chance of recovering even part of their previous life. There are no cures, but no one tells him. They say it takes a lot of patience to be good carriers of LIS. The truth is that faced with such serious injuries to certain parts of our body, the doctors still do not know how to behave. So, right now, it's more important to find some form of communication for these brain without a body. One of them wrote a book slamming one eyelid: a pro's read a list of letters in order of frequency in a given language and slams the lid when the patient feels the letter he wants and so on to write a good book. Book is not as bitter as you might think, cry, certainly, but not the classic "I'm like evil, wretched me." No, Jean Dominique Bauby goes further recounts her life from inside, for some, but also said his former life without regret nothing and mostly without rancor or blame to any reserve. Neither those who abandoned him, nor even to those who, while standogli close, they can not make her less painful hell. The title of this book is "The Diving Bell and the Butterfly" which was adapted from a film of the same name. I can only advise read and see. But since I am a fucking bastard, and asshole picky, I found something in the book of Jean-Do (is his nickname in the book, I'll never take this freedom) which may look like a mistake, so I take this opportunity to continue to talk about books and movies:

Jean-Do writes that the only man who appeared in the literature that is affected by the LIS is Noirtier de Villefort, who, far from being a gourmet cheese, is a character of the Count of Monte Cristo by Alexander Duemazzi that after a stroke remains mute and paralyzed and unable to communicate except with his eyes, in fact. But we know that in 1939 brought out a novel written by Dalton Trumbo who was called "Johnny Got His Gun" in which the hapless protagonist remains without limbs, deaf, blind and mute. Practically a trunk with a brain. His name is Joe Bonham, a soldier, a bomb has stolen everything and communicate with his nurse, raising and lowering his head on the pillow. Joe Fortunato our memory to remember the Morse code! Too bad that what he asks the nurse to his superiors and is totally insane: first asked to die, then would even be shown in public to deter young people from enrollment, because according to this poor fool there are ideals that are worth a life, there is no freedom or democracy worth our freedom to watch a girl or a sunset and to smell a flower or bread. What nonsense Joe, you believe that an Afghan were well under the dictatorship of the Taliban? And maybe you believe that any Iraqi was happy when Saddam went out to the balcony to shoot his gun again? Of course not, they are better now that I'm free! Or dead. Or maimed.

Basically, if you want to know more (and better) about the LIS you should get these books:
The Diving Bell and the Butterfly (1997) by Jean Dominique Bauby
Johnny Got His Gun (1939) by Dalton Trumbo
The Count of Monte Cristo (1844) attributed to Alexandre Dumas pere (but you must have less than 30 years might not otherwise be able to read the final) or

questi film:
Lo scafandro e la farfalla (2007) di Julian Schnabel con Mathieu Amalric
E Johnny prese il fucile (1971) di Dalton Trumbo con Timothy Bottoms


Nota Bene: questo post NON è una guida medica. Se vi sentite male andate da un medico e non da Google.


Vi lascio con qualche stralcio di libri:



If there could be a next time and somebody said "let's fight for liberty", he would say "mister my life is important. I'm not a fool and when I swap my life for liberty I've got to know in advance what liberty is, and whose idea of liberty we're talking about and just how much of that liberty we're going to have. And what's more mister - are you as much interested in liberty as you want me to be? And maybe too much liberty will be as bad as too little liberty and I think you're a goddamn fourflusher talking through your hat, and I've already decided that I like the liberty I've got right here. The liberty to walk and see and hear and talk and eat and sleep with my girl. I think I like that liberty better than fighting for a lot of things we won't get and ending up without any liberty at all. Ending up dead and rotting before my life is even begun good or ending up like a side of beef. Thank you mister. You fight for liberty. Me, I don't care for some. (Johnny got his gun, 1939)






Y a-t-il dans ce cosmos des clefs pour déverrouiller mon scaphandre ? Une ligne de métro sans terminus ? Une monnaie assez forte pour racheter ma liberté ? Il faut chercher autre part. J'y vais. (Le scaphandre et le papillon, 1997)

 

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